What do you say to the parents of a Down syndrome child?

THINGS TO SAY – These are the things parents have found comforting or made them feel good:

• “Congratulations.” They just had a baby!
• “He/She looks just like you.” The baby probably does look like someone in the family.
• Tell them what you have learned from the RMDSA website and share the resources you’ve identified.

How can parents help people with Down syndrome?

One of the best ways to meet other parents is to get involved in a local Down syndrome parent support group. These groups can provide you with an excellent forum for sharing your feelings and concerns as a new parent, and an opportunity to learn from the experiences of others who have been in your shoes.

What support is offered to people with Down syndrome?

Most children with Down’s syndrome will qualify for Disability Living Allowance. You might also be entitled to Carer’s Allowance and your family might receive additional financial support through Tax Credits.

What are some organizations that can help a family cope with a child with Down syndrome?

Here are some notable Down syndrome organizations and support groups for parents and caregivers to get you started.

• National Down Syndrome Congress (NDSC)
• National Down Syndrome Society (NDSS)
• International Mosaic Down Syndrome Association (IMDSA)
• National Association for Down Syndrome (NADS)

How do you talk to someone with Down syndrome?

Always speak directly with the person with Down syndrome, not the person with them. Give them time to respond. Take their lead on what support they need to communicate. Know that every person with Down syndrome is unique, with their individual personality, strengths and support needs.

How does having a child with Down syndrome affect the family?

The experience and knowledge gained by having a sibling with Down syndrome also seems to make children more accepting and appreciative of differences. They tend to be more aware of the difficulties others might be going through, and often surprise parents and others with their wisdom, insight and empathy.

How can a support worker help someone with Down syndrome?

Social worker: People with Down’s syndrome may need help in overcoming some social problems, such as finding accommodation or applying for financial benefits. A social worker will help them to do this, allowing them to live more independently.

Are there special programs for children with Down syndrome?

The State of California Department of Developmental Services has 21 regional centers in the state that run programs and provide funding for individuals with defined disabilities that manifest before 18 years of age. Children with Down syndrome are eligible for these programs.

How do you show respect to someone with Down syndrome?

Use people first language; say that someone is a “person with Down syndrome,” “has Down syndrome” or “is living with Down syndrome.” Do not say “Down person” or that a person “suffers from” or is “afflicted with” Down syndrome.

How do you calm a child with Down syndrome?

Everyday Tips

1. Give your child chores around the house.
2. Have your child play with other kids who do and don’t have Down syndrome.
3. Keep your expectations high as your child tries and learns new things.
4. Make time to play, read, have fun, and go out together.
5. Support your child in doing day-to-day tasks on their own.